• Mental Health

    IT’S A TOUGH LIFE….OR IS IT?

    By Aanika. As if life wasn’t hard enough, now COVID-19 comes into the mix! I am a 41 year old Sikh Punjabi woman living in London who is now having to adjust to online teaching of Mathematics at secondary school level. Having been brought up in a tight knit and fairly large family this phase of social distancing is also teaching me many new ways of living. Let’s be honest 2020 hasn’t been a great year so far, our New Years resolutions broke before they even started, and the end is nowhere to be seen. So how do we stay positive in this situation or see the glass half full?…

  • ALS,  Covid-19,  Motor Neurone Disease

    How To Make A Face Mask In 1 Minute – No Sewing!

    As an experienced carer for MND, Heart, and Parkinson’s Disease patients, I understand the need to wear a mask around the vulnerable for their protection. During this global Covid-19 pandemic I am currently a volunteer helping the elderly in my community who are self isolating and due to the shortage of masks I made some washable and reusable face masks. I was inspired by a study carried out by Cambridge University in 2013 (Cambridge Study) which examined homemade masks as an alternative to commercial face masks. Please share this video as an article in the NY Times reports ” poorer countries losing out to wealthier ones in the global scrum…

  • Events

    Fundraising Gala Dinner & Dance

    Eat Drink & Be Giving Exciting news! For the first time ever we have collaborated with MND Association to organise a ‘Gala Dinner & Dance’. Please join us for a charity dinner which includes a complimentary glass of bubbly, 3 course Indian cuisine, glass of wine, soft drinks, raffle and auction, followed by a night of music by Paragon, dancing and entertainment with top London based Bollywood Choreographer Jay Kumar. Special appearance by British DJs, producers and radio broadcasters for BBC Asian Network and formerly BBC 1Xtra – Panjabi Hit Squad. All proceeds from this event will go towards research to help find a cure for Motor Neurone disease (also…

  • Motor Neurone Disease

    Raising Awareness at Sikh Temple

    I was honoured to be invited by Brent Sikh Centre Gurdwara (Temple) to address the congregation and raise awareness about Motor Neurone Disease within the Asian community. I felt this was a great opportunity to make a real difference for those people living with and affected by MND. I had discovered through my research that very few Asian people used the services provided by the Motor Neurone Disease Association. Through further discussions my belief was validated that there is a very real stigma attached to those from the community who have been diagnosed with any neurological disorder. They talked about how they hide their loved ones from the world as…

  • Motor Neurone Disease

    Living With Motor Neurone Disease

      I had the pleasure of meeting Dr Hemangi Sane and her mother at the MND conference in Dublin. She was diagnosed with MND in 2004 during her medical practice in New York and then went on to start a non-profit organisation called ‘Asha Ek Hope‘ foundation for MND/ALS in Mumbai. She was honoured with International Women’s Day Award in the year 2013 by the Mayor of Mumbai city for treating and empowering patients with ALS/MND and research for a cure. She has spoken of what it is like living with MND : “MND is a physical condition which psychologically breakdowns the affected person and the family members. But we have to…

  • Dementia

    Memrica Prompt

    As the MediVoice application evolves and matures I have been fortunate enough to come into contact with many remarkable people passionate about helping those with neurological conditions. One such person I met recently was Mary Matthews who like me formed her company, Memrica, after her sister passed away suffering from motor neurone disease. Mary wanted to build something that would spark memories of her and to help others with neurological diseases. She developed Prompt, a mobile application that solves memory problems of users facing with dementia and other neurological conditions. It helps users to create notes about things they want to remember. The company also creates links between stored content…

  • Motor Neurone Disease

    Motor Neurone Disease VS Parkinson’s Disease

    In its early stage MND (also known as ALS and Lou Gerigh’s disease) can show similar symptoms as Parkinson’s disease, which is also a neurological disease. Commonalities between MND and Parkinson’s disease allow researchers to develop more effective treatments for both diseases. Difference between Parkinson’s and MND Parkinson’s disease typically begins with problem writing followed by tremors, muscle stiffness, difficulty standing or walking, changes in speech, slow movements, impaired posture and balance, and loss of automatic movements. Signs and symptoms of MND include slurred speech, hoarseness, difficulty swallowing, emotional liability (involuntary laughing or crying), loss of tongue muscle contour, excess saliva, difficulty breathing, limp muscles or flaccid weakness, muscle wasting,…