• Events

    Fundraising Gala Dinner & Dance

    Eat Drink & Be Giving Exciting news! For the first time ever we have collaborated with MND Association to organise a ‘Gala Dinner & Dance’. Please join us for a charity dinner which includes a complimentary glass of bubbly, 3 course Indian cuisine, glass of wine, soft drinks, raffle and auction, followed by a night of music by Paragon, dancing and entertainment with top London based Bollywood Choreographer Jay Kumar. Special appearance by British DJs, producers and radio broadcasters for BBC Asian Network and formerly BBC 1Xtra – Panjabi Hit Squad. All proceeds from this event will go towards research to help find a cure for Motor Neurone disease (also…

  • Motor Neurone Disease

    Raising Awareness at Sikh Temple

    I was honoured to be invited by Brent Sikh Centre Gurdwara (Temple) to address the congregation and raise awareness about Motor Neurone Disease within the Asian community. I felt this was a great opportunity to make a real difference for those people living with and affected by MND. I had discovered through my research that very few Asian people used the services provided by the Motor Neurone Disease Association. Through further discussions my belief was validated that there is a very real stigma attached to those from the community who have been diagnosed with any neurological disorder. They talked about how they hide their loved ones from the world as…

  • Motor Neurone Disease

    Living With Motor Neurone Disease

      I had the pleasure of meeting Dr Hemangi Sane and her mother at the MND conference in Dublin. She was diagnosed with MND in 2004 during her medical practice in New York and then went on to start a non-profit organisation called ‘Asha Ek Hope‘ foundation for MND/ALS in Mumbai. She was honoured with International Women’s Day Award in the year 2013 by the Mayor of Mumbai city for treating and empowering patients with ALS/MND and research for a cure. She has spoken of what it is like living with MND : “MND is a physical condition which psychologically breakdowns the affected person and the family members. But we have to…

  • Dementia

    Memrica Prompt

    As the MediVoice application evolves and matures I have been fortunate enough to come into contact with many remarkable people passionate about helping those with neurological conditions. One such person I met recently was Mary Matthews who like me formed her company, Memrica, after her sister passed away suffering from motor neurone disease. Mary wanted to build something that would spark memories of her and to help others with neurological diseases. She developed Prompt, a mobile application that solves memory problems of users facing with dementia and other neurological conditions. It helps users to create notes about things they want to remember. The company also creates links between stored content…

  • Motor Neurone Disease

    Motor Neurone Disease VS Parkinson’s Disease

    In its early stage MND (also known as ALS and Lou Gerigh’s disease) can show similar symptoms as Parkinson’s disease, which is also a neurological disease. Commonalities between MND and Parkinson’s disease allow researchers to develop more effective treatments for both diseases. Difference between Parkinson’s and MND Parkinson’s disease typically begins with problem writing followed by tremors, muscle stiffness, difficulty standing or walking, changes in speech, slow movements, impaired posture and balance, and loss of automatic movements. Signs and symptoms of MND include slurred speech, hoarseness, difficulty swallowing, emotional liability (involuntary laughing or crying), loss of tongue muscle contour, excess saliva, difficulty breathing, limp muscles or flaccid weakness, muscle wasting,…

  • Motor Neurone Disease

    What Is MND

    MND is the abbreviation for Motor Neurone Disease, also known as ALS (Amyotrophic Lateral Sclerosis) and Lou Gehrig’s Disease. Motor Neurone Disease Association have produced a short animated video to help explain what MND is…. Please click here.

  • Motor Neurone Disease

    Short Story Competition

    Claret Press announces the first MNDA short story competition! Net proceeds will go to support the Motor Neurone Disease Association. The competition is inspired by the work of Claret Press author Sarah Gray, who has Motor Neurone disease. Her short story collection Half Life deals with aspects of physical and mental illness in innovative and original ways. The Judges will be looking for similarly engaging and novel stories of no more than 5,000 words inspired by these issues. Stories can be written from any perspective and in any format. This can include murder mystery, thriller, romance, post-modern, horror, etc. Entry forms can be submitted by clicking on the button below. On the subject line state: 2018 MNDA…